English
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SpanishAnkylosing spondylitis (pronounced ank-kih-low-sing spon-dill-eye-tiss), or AS, is a form of arthritis that primarily affects the spine, although other joints can become involved. It causes inflammation of the spinal joints (vertebrae) that can lead to severe, chronic pain and discomfort.
ABOUT DISEASE
In more advanced cases this inflammation can lead to ankylosis — new bone formation in the spine — causing sections of the spine to fuse in a fixed, immobile position.
AS can also cause inflammation, pain, and stiffness in other areas of the body such as the shoulders, hips, ribs, heels, and small joints of the hands and feet. Sometimes the eyes can become involved (known as iritis or uveitis), and — rarely — the lungs and heart can be affected.
The hallmark feature of ankylosing spondylitis is the involvement of the sacroiliac (SI) joints during the progression of the disease. The SI joints are located at the base of the spine, where the spine joins the pelvis.
FROM LINZEE
| Ankylosing Spondylitis is an inflammatory disease. Often times, pain occurs after periods of inactivity. Typical onset of symptoms is in early adulthood. It affects women differently than it does men. Inflammation can occur in various parts of the body such as the eyes. Over time, the disease can cause some of the small bones in your spine to fuse resulting in less flexibility and a hunched posture. There does seem to be a genetic connection with the HLA-B27 gene. People with this gene are at a higher risk. Having this gene doesn’t mean you will develop AS, and some people have AS who don’t have the gene. FROM MELANIE Ankylosing Spondylitis, or AS, is a type of inflammatory arthritis that predominantly affects the spine and the SI joints. It can also affect other joints in the body, the eyes, and cause neurological problems. In advanced/severe cases, fusion can occur in the spine and joints. This disease is progressive and there is no cure. |
SYMPTOMS
+ Pain during periods of rest, Stiffness in lower back and hips, Neck pain, Fatigue
+ Chronic pain in my spine, SI joints, hips, neck, and a few other joints in my body that is sometimes severe. Limited mobility and sometimes complete loss of mobility in my lower back, my right hip, my right leg, and my neck. Debilitating fatigue, uveitis, and brain fog.
YOUR POINT OF CONTACT
LINZEE
ABOUT |I am an elementary teacher in Alabama. I have an incredible husband, a cranky cat, and a bunch of third graders who will forever hold the dearest place in my heart. I enjoy biking, time with family, crafting, serving in our church, cooking, and gardening. I hope to be a help to others along this journey!
AUTOIMMUNE DISEASES | ANKYLOSING SPONDYLITIS
MELANIE
ABOUT |I am 37 years old and I live in Birdsboro, PA. I have been married to my high school sweetheart since October 12th, 2002, we have 3 amazing kids; Sapphire (13), Desmond (9), and Scarlett (7). We have 3 rescue dogs and 2 rescue cats. I was a hairstylist for 19 years before having to step away in February 2019. I am now the salon’s social media manager and guest experience manager.
AUTOIMMUNE DISEASES | ANKYLOSING SPONDYLITIS
SPECIALISTS
+ Rheumatologist
+ Orthopedist
+ Possibly a Neurologist
+ A Physical Therapist
+ Possibly a Pain Management Specialist
BLOOD TESTS
LINZEE
+ There aren’t specific tests to identify AS, but there are various blood tests that can show inflammation. They might check your SED rate and other factors
MELANIE
+ CRP, Sed rate, ANA, HLA-B27, CBC, CMP. Frequency will REALLY depend on your doctor.
MEDICATIONS
LINZEE
+ NSAIDS, Biologics, Turmeric, LDN (Osteopathic medicine)
MELANIE
+ Immunosuppressants are the main course of treatment and are used to help slow the progression of the disease. I am on Methotrexate orally, and Simponi Aria infusions. The best supplements would be anything that helps control inflammation (such as turmeric). Some doctors prescribe pain medications as well but these vary greatly depending on your doctor.
METHODS OF HEALING
LINZEE
I felt very compelled to not go the Biologics route, which led me to an osteopathic doctor in Montgomery, AL. She recommended LDN. I didn’t have much success with this. She did, at this time, recommend I not take ibuprofen. This terrified me. I stopped, and I did feel it made a difference. In reading about more natural approaches to healing, I learned a lot about food, stress, sleep, and exercise. I read about the Autoimmune Protocol Diet. It is an elimination diet. I was a bit overwhelmed by it, and I didn’t follow through, but I did cut out soy, preservatives, gluten, and drastically lessened the amount of processed sugar I was eating. This helped tremendously. The osteopathic doctor asked how my oral health was, and I was about to have a tooth pulled that had an unsuccessful root canal. She recommended I see a Biologic dentist. After a long period of diet change and the tooth extraction, things seemed to improve. When I hit the greatest amount of pain I had ever experienced, sleeping was almost impossible. Being still was so painful, so sleep was painful. It was horrible. We purchased a bed frame that allowed our mattress to recline. This was an incredible decision, as I was able to sleep again. Sleep is SO important in the healing process. Above everything else, my faith in Christ has carried me through. It’s so easy to get lost in the pain of this disease, and if I didn’t have hope in Him, I’m certain I would’ve given up long ago. -Diet (nourishing, clean food; Danielle Walker’s resources have been exponentially helpful)
-Faith
-Being active
-Stress Management
-Positive attitude
-Having a doctor in which you have a good rapport
-Recognizing when my body is needs rest
-Sleep
MELANIE
I do yoga on a very regular basis which has helped to keep me flexible, strong, and mobile.
Massage therapy and acupuncture have helped with my pain and stress reduction!
REALLY listening to your body is the most important thing!!! Take rest days when you need them and ask for help when you need it!
Having an incredible support system helps SO much! My family is so understanding and supportive and I am so grateful for that!
AUTOIMMUNE RESOURCES
Here are some great websites, authors, podcasts and other resources to help you navigate your Autoimmune Disease.
AUTOIMMUNE STORIES
These are the women that have shared their autoimmune journey with us. Please take a moment to read some of their brave, honest and revealing stories about their diagnosis, successes, hardships and their lives.
